This year, I’ve been having an ongoing struggle with seeking restful rest. I find it difficult to switch off even at the best of times, and I’ve tried my hand at many of these popularised methods of winding down… with varying levels of success.
It’s no secret that the word ‘influencer’ has become quite a loaded one over the last few years. We’re at a point in time where in most people, that word conjures up quite a set image: conventionally beautiful people living aspirational lives, with hundreds of thousands of people following said lives online.
It’s safe to say that purchasing my power-chair changed my life for the better. However, something I’ve been asked many times over the last few years is why I opted for a power-chair, rather than a mobility scooter… and whether I had any advice for those trying to make that choice themselves.
Ever since I acquired my chronic illness, accessible and inclusive employment has been a topic close to my heart.
Like many people with long-term illnesses, I’m one of the ‘in-betweeners’. While I was studying, I knew that I would be well enough to pursue a career in some capacity after I graduated. However, I definitely wouldn’t be well enough to do full-time hours, commute to a workplace, ...
Every May, we honour ME Awareness Month. Every May, people living with ME/CFS come together to share their lived experiences and use their limited energy to advocate for change. Every May, we try our best to show those outside of the community why they should care about ME/CFS awareness too.
Over the last year, I’ve barely visited any public places. Any trips out of the house have been short enough for me to stand and walk without requiring wheels, and as a result, I can count on one hand the number of times I’ve used George (my transit wheelchair) and Janice (my power-chair) in the last twelve months.
I have an energy-limiting chronic illness, and because of necessary pacing and activity management to keep on top of my symptoms, I’m primarily based at home. I work from home, socialise from home, and do my best to live a full and happy life from home…
My entire life had to be adapted to fit around my chronic migraines – not ideal for somebody who had just started studying for their postgraduate degree.
If you’re feeling inspired to make a change but you too want to avoid sacrificing anything else as we head into 2021, allow me to share a few ideas for more compassionate resolutions you could consider instead…
Something I often speak about in reference to my chronic illness journey is the fact I’m an ‘in-betweener’. I’m frequently caught between being ‘well enough’ to look after myself, but still needing support to live the life I choose. And one of the areas where I think this is easiest to see is in my living situation.
After I graduated from university and moved back in with my family, I knew t...
Times are strange for many chronically ill people at the moment. Even though lockdown restrictions have eased, many of the chronic illness community have found themselves facing a somewhat unexpected challenge; re-building tolerance for everyday life.
I’ll be honest, there was initially a part of me that thought the many weeks of staying indoors and shielding during lockdown might be benefic...
The last three months have been a rather bizarre time for people in the UK. Day-to-day life radically changed almost overnight, and it isn’t surprising that the gradual easing of lockdown restrictions in recent weeks has evoked mixed opinions. Many people, most notably the non-disabled population, are hyped for some semblance of ‘normality’ to return. There’s been widespread celebration of shop...
A month into the UK’s lockdown, the general public are just about settling into routines and adapting to their new circumstances. It’s been uplifting to see many non-disabled people going out of their way to support the most vulnerable in society, and it’s important not to discount the incredible work that care workers, charities and volunteers have been doing to ensure we’re as safe and secure...
As somebody with ME/CFS who has been sitting back and calmly watching the country scramble to adapt, it occurred to me that there are still key differences in our perceptions of what it means to be isolated.
With the coronavirus pandemic confining more and more of the general population within their homes too, we’re faced with a rather unique social challenge: figuring out how to cope when your support network is also affected.
With March being National Bed Month, I thought I’d use today’s piece to discuss my experiences with a natural human function that continues to evade me… sleep.
Y’know what’s really fun? Having a long-term condition that causes chronic fatigue, and yet simultaneously impacts your ability to achieve restorative sleep. Sleep issues are widely reported in my illness (ME/CFS), and whilst some peo...
Mobility aids-users under the age of 30 were invited to share their own opinions on the topic, and let’s just say the responses provided plenty of food for thought…
I became a power-chair user in 2018. Although I’d previously been using a transit wheelchair, due to difficulties with walking and standing, I’d actually been putting off the idea of upgrading and joining the power-chair club...
Well here we are; it’s that time again. The time where social media posts become rife with meaningful life quotes scrawled out in italics and everybody under the sun declaring this year will be their year.
And whilst there’s nothing at all wrong with making plans and preparations to ensure the coming months are as fulfilling as possible, the beginning of the New Year can bring a unique sort ...
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Featured Careco Author:
Natasha Bruce-Jones is an Occupational Therapist who is passionate about improving independence and quality of life for those with difficulties.
CareCo is a trading name of Careco (UK) Limited who are an Appointed Representative of Fish Administration Limited. Fish Administration Limited is authorised and regulated by the Financial Conduct Authority. Registered in England & Wales under Company Registration Number 4214119, Registered Office; Rossington's Business Park, West Carr Road, Retford, Nottinghamshire, DN22 7SW. Careco (UK) Limited is registered in England & Wales under Company Registration Number 06831125, Registered Office; Westgate Chambers, 8A Elm Park Road, Pinner, Middlesex, HA5 3LA. Careco (UK) Limited's Firm Reference Number is 507389 and Fish Administration Limited's Firm Reference Number is 310172. These details can be checked on the Financial Services Register by visiting the FCA's website at www.fca.org.uk or by contacting the FCA on 0800 111 6768. Fish Administration Ltd is part of the PIB Group.
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